Esella has been really into Play Dough...its her new obsession. But its great because it will keep her occupied for 30-60 minutes at a time. Which means I can get things done (like update the blog).
Fundraising is also keeping me busy. Though the cash flow has slowed, I have been focusing on getting donations for raffle prizes and ordering things for the Lemonade Stand and for the Walk itself. My friend Somer, who is throwing our Casino Night fund raiser has been running all over the East Bay getting raffle prizes for Casino Night! She is doing an awesome job. I wish I could "get out there" like her...I would prbably get even more prizes that way, but with two kids 2 and under??? Yeah not so much. I have been using the internet for most of my fundraising endeavors. Email is GREAT!!
And a friend of mine, Kristen, donated her time and made us a Team Esella Logo! Here it is....isn't it adorable??
We have definitely learned a few things in the process of fund raising. For one next year we shall begin getting prizes earlier as many companies want between 6 weeks to 3 MONTHS notice of a request for a donation! Despite this, Somer has still been able to rally up several awesome prizes. And most of the time she was met with kind faces even if they had to say no.
However...she did run into one not-so-kind face. Or should I say ignorant. Apparently after Somer was done explaining the donation was for Arthritis, the manager of the establishment said the word "Arthritis" in such a way to say it wasn't a big deal, not worthy, etc. She then said that they only have so much allotted for charities a year and they don't have any for our charity.
You know...its fine to say "No, we can't right now." But to act like our cause wasn't important enough...
I've "met" many parents of children with JIA the last few months and unfortunately, this outlook is not uncommon. People have no idea what this disease is. It is an autoimmune disease...the body attacks itself. You can't just take an Alieve and go about your way...I actually wish it wasn't called "Arthritis" because people immediately have some (wrong) preconceived notions when they hear it.
But it is what it is...so educate we will!
And Everett?? He is just the sweetest boy. SO happy! He smiles and flirts with everyone. He also is a pretty good sleeper (better than Esella!) and is rarely fussy for no reason. He is 12 weeks now an still loves his swaddle.
Not much else going on...just trying to find a moment here and there to relax.
2 comments:
I just wanted to say that you, your family, and most importantly - your daughter are amazing, strong, and brave people. My name is Kiley and I am 25 and am living with JRA in every joint, although it's said to be in remission. I was diagnosed when I was 18 months old. Constant pain, a total hip replacement, and 2 total shoulder replacements later - I know what you all are going through. I wish you all the best and you will forever be in my thoughts and prayers.
Such cute pix of the kids!
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