Friday, August 26, 2011

It's been TOO long...

WOW. It has been over a MONTH since I updated! I guess we have been busy around here!


Lets see...Esella is going to school two days a week and LOVING it! Her vocabulary is continuing to just grow and grow and she is bringing home her "artwork" every day she goes. She is an amazing big sister. She LOVES Everett and at dinner the two of them seriously just laugh at each other the entire time. Exactly why I wanted to have more than one child...the bond they already have is awesome!


And Everett?? He continues to be just the happiest and sweetest boy. Full of smiles and laughs... And the little bugger started crawling about 4 weeks ago now, AND he pulled himself the same day! He is obsessed with standing and is getting faster at crawling...I have to really watch him. And we have had to do a little updated baby proofing as well. AND he also will now pull himself up, let go, and get SO excited that he falls! his other favorite activity is having you hold his hands so he can "walk". This kid is exhausting. Where did my BABY go?????


Justin is working HARD and long hours. Building satellites is quite literally a 24-7 job. We miss him being home more but we are thankful he has a good job. 


I plan on taking on a couple private clients sometime in the fall. I need to order some things before I can start that up...and take care of some business. Looking forward to working a little again!


The last month...we have been to Sac to meet up with some friends and meet new people...we went to A Day Out With Thomas and got to ride Thomas the Train (Both kids LOVED it!!) and we have been trying to get together with Melissa, CJ and Baby Kyle once a week.....CJ and Ellie just love playing together and I am so thankful we live just a couple miles from cousins! 

And in JA news.....Esella had a rheumy appt yesterday. As we were expecting, we need to move to injections of her methotrexate (right now she takes it orally) and also, we will be DOUBLING her dose. That part scares me a little. SO far E has been fortunate to not really have any side effects so doubling her dose makes me nervous. But we will have to just take it one day at a time.

They also confirmed that she has at least one other finger involved (that would be three confirmed fingers and her one knee). Justin and I have suspected this more months now, because if we forget a dose of her Naproxen, we sometimes notice puffy fingers...but they have always been quiet when we go to the doctor. Yesterday they found her pointer finger on her LEFT hand to be puffy..that is the first sign of arthritis on the left side of her body.

In addition, they explained that it is unusual for finger involvement in the type of JA she has (oligio). Not impossible, just unusual. I know it is more common in the psoriasis type, but so far Esella is rash free. But regardless, the treatment would be the same at this point no matter the label.

So once we get the paperwork all faxed to our prescription company and they ship us the new bottles and needles, Justin will begin giving our sweet girl a shot every Friday night in hopes of suppressing her little immune system so that it stops attacking her joints. 



Well that about sums it all up! 



Here are a few pictures from the last month...I'll get back to regular blogging!!! 

Random one of Everett and Kyle a couple weeks ago.




Does the girl have fashion taste or WHAT??

And here are a bunch from a Day Out With Thomas...

our attempt at a family pic...ah ha ha ha ha




amazing faces children....amazing...


Bathe time!!! So fun in our house!
 



One from when we went to go visit David when he was recovering from his hip replacement.


Crawling and pulling up in the same day!

A couple of weeks ago...a baby meet up...
 



And later that day...a JA meet up. This is Bevin with Esella. Bevin also has JA and is just a couple months younger than E. But look at them...you can't even tell. Two of the most beautiful and energetic little girls!



   


Well....that is all for now. Sorry for the month off...I'll be sure to stay up to date!!!

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